Posted February 16th, 2007 10:37 PM IP
Hi, I have a little boy called Kian who has downs syndrome. when he was born we also found out that he had hirschsprungs disease. He had to have a operation when he was 2 days old. He had a colostomy bag for 4 months then had a reversal and pull thru. He's doing ok gets constipated quite alot but has medication daily.
Kian is now 20 months old and doing really well. He is crawling standing up and walking holding on to push along toy. He is a very smiley boy always really happy.
Would love to hear from any other mums with DS child with hirschsprungs.