Sharon Dembinski, RNP,CMA
Sharon@MethadoneSupport.org

Sharon is a Nurse Practitioner, Certified Methadone Advocate, practices at Discovery House, a Rhode Island-based Opiate Treatment provider with 16 clinics in 5 states and is the Lead Developer and Coordinator of the "Mother's On Methadone" (MOM) Program  at Kent Hospital in Rhode Island.  Sharon is also on the Board of Advisors to Methadone Support Org.

Sharon became a Recovery and Methadone Advocate when she discovered her son’s addiction to heroin. After a one-year struggle, 5 rehab admissions and 3 overdoses, her son finally achieved a sustained recovery and has maintained that recovery for over 3 years.

Sharon decided to try and help others and learned all she could about the effectiveness of MMT as well as the problems that exist in the clinic systems. She had found her calling and became a Certified Methadone Advocate. She started working on a proposal for the Mothers On Methadone (MOM) Program at the hospital where she worked as a Nurse Practitioner in the Newborn Intensive Care Unit.  She discovered that at some hospitals MMT patients were only allowed to visit their babies one hour a day.  Sharon knew that this was not beneficial for the maternal-newborn bonding that is so essential for both mother and baby.

After a year, the "MOM" program was finally approved and is now up and running at its full potential. "MOM" supports and educates mothers on MMT or those dependent on opioids for pain management. The highlights of the program are:

*   Prenatal support, education and consultation with a healthcare professional specializing in methadone, pregnancy and the newborn where all the important aspects of pregnancy, MMT, neonatal abstinence syndrome and breastfeeding are discussed and recovery support is offered.


*   Kent Hospital offers a Level II, Special Care Nursery staffed with nurses,  nurse practitioners and physicians with specialized training and experience treating babies experiencing Neonatal Abstinence Syndrome.


*   A counseling and assessment session with a social worker who can offer assistance to link the mother with all necessary community agencies, cost-free classes including childbirth, infant care, breastfeeding and infant CPR.

*   Nursery Volunteer Program that includes cuddlers to fill in during the times the baby's family is not available.


*   With the goal of promoting bonding and educational opportunities in mind, prolonged parental visits are encouraged and supported with cafeteria vouchers that are available for those who may need them.





A very familiar name to our organization and website, Methadone Support Org, is Sharon Dembinski. Sharon is our pregnancy guru and my personal hero! In addition to everything else you already know she does.....she now practices at the Discovery House clinics also in Rhode Island in her "spare" time! and of course....she also has this page here at the website. Yikes.....did someone say "spare time", lol???

That being said.....on with the alert. Sharon recently discovered an error in TIP 43 on morphine dosing for the treatment of neonatal abstinence syndrome (NAS). She alerted CSAT to this potential danger and the following is their response/alert. I would also like to take this opportunity to once again thank Sharon for her hard work ......making this her life's passion! Had Sharon not found this error....or....."typo" infant's lives could have been lost. THANK YOU, SHARON!!!....Carol

READ ALERT!!




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mom2bX3
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Posts: 2
Registered: Feb 2008
 Posted February 16th, 2008 12:49 PM   IP           Reply with quote Edit Post Delete post
Hi, my name is Jeanne. I just found out I am 6 weeks pregnant. This is my 3rd child. My oldest used to joke and say I only went into heat every 7 years cuz there are 7 years between my girls. WELL, this one will be due when the girls turn 14 and 7!!! WIERD!! Im due Oct 7th, 08. Hope to learn lots on this site. I want to be as educated as much as I can on this subject. In my part of the world, Its a very uneducated subject . Not uneducated, just havent been RE-EDUCATED in QUITE SOME TIME it seems!!!!!!!
D.D10/20/08

Jeanne
   
susie3827
*MODERATOR*

Posts: 1209
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 Posted February 16th, 2008 05:40 PM   IP           Reply with quote Edit Post Delete post
Hi there Jeanne....congratulations on your pregnancy....no. 3...and it does seem like your oldest is right...lol..

Welcome to the site..the best thing I can tell you is to go over all the old posts..esp. the archives...even if the title of the post isn't something that concerns or interests you...what usually happens is we go off on tangents and discuss all kinds of stuff in each of the threads...so chances are, there will be something relevant for you in these posts.

Again, welcome to our family...we have the best site on the internt.

Love Susie.

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
brittanyrm
Member

Posts: 107
Registered: Sep 2007
 Posted February 25th, 2008 06:58 PM   IP           Reply with quote Edit Post Delete post
Welcome Jeanne this is a great site to be on the women here are so kind and helpful and I do not know what I would have done without them during my pregnancy It was wonderful to come here daily and talk to other people feeling the same things I was feeling. If you have any questions that I could help with, just my experience or opinion, I would be more than happy to help.

Congrats on your baby!!
From,
Renee

Lilypie 2nd Birthday Ticker

Lilypie Expecting a baby Ticker
   
Sweet_Serenity
Member

Posts: 118
Registered: Oct 2007
 Posted March 4th, 2008 09:19 AM   IP           Reply with quote Edit Post Delete post
HEEY everyone who is still online, is anyone still pregges? i am due on the 31rst but I have a sceduled c-section on the 24th, of March. How is every one doing? and as far as updates, were is everyone!!!!!i wanna know how things went for everyone, I was thinking we could start a thread for those who would want to sit and write out there baby story.. I know I would be more than interested to here how it was for everyone,I also think it could be a great ice breaker for the new moms who come , and to see how much we all have in common. or even a blog thread, somthing we could look back on and for other moms to keep up with each other and for those stories that have not had there ending yet...
   
Jessica1381
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 Posted March 11th, 2008 03:53 PM   IP           Reply with quote Edit Post Delete post
Hi I am Jessica and I am new to this web site. I am just over 9 weeks pregnant and on 45 milligrams of methadone. My due date is October 11, 2008. I want to come off methadone all together before the baby is born! I start my decrease in a few weeks... once I hit my 2nd trimester. I will go down 1 milligram every other day. Wish my baby and I luck and say prayers for us that we do well. I want my baby to be healthy and happy. Thanks, Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
zenith
Member

Posts: 233
Registered: May 2006
 Posted March 12th, 2008 11:02 AM   IP           Reply with quote Edit Post Delete post
Jessica, hon, I just want to let you know that the baby still feels the withdrawals and goes through NAS in utero, and the rate you are talking about tapering is too rapid. You should not taper your dose by more than 10% of your dose every 2-4 weeks even when you are not pregnant. Most providers feel it is best to taper the baby off after it is born, when it is full term and has a more mature nervous system, and most importantly, where it can be observed and treated for any symptoms that arise. Many good moms like yourself want what is best for the baby, of course, and the assume that if they get off methadone the baby will not have to suffer when it is born, but they do not realize that the baby is really going through the same thing, at a time when it is less capable of enduring it. Some studies show that even if the mom is not feeling any withdrawals herself, the baby may still be feeling them. So, please be careful and if you do feel symptoms of withdrawals, please consider slowing or stopping your taper.
   
Jessica1381
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Posts: 1215
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 Posted March 12th, 2008 11:18 AM   IP           Reply with quote Edit Post Delete post
Thank you 4 your comment and concern. I have decided tha ti am going to try this and IF I feel any withdrawal at all then I will take a break or stop it all together. I feel that I have to try. I just cant go through the hell I endured watching my daughter in the hospitol for 6 weeks due to methadone withdrawal. It was the worst experience of my life. I am going to try really hard to do this. I hope to find support from everyone here as I travel this journey, as scary as it may be, I have to try. I have to believe in my heart that my baby will be fine and make it through methadone detox with me. I have to believe that she or he will be born healthy and happy. I just believe that in my heart. I have too... Please understand. I took the other rout and I'd rather avoid it this time. I didnt "enjoy" that experience and I was heart broken and tormented the whole time she was in the hospitol. I DO NOT WANT TO GO THROUGH THAT AGAIN! Thank You , hope to have your support and encouragement! Thank you, Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
susie3827
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Posts: 1209
Registered: Sep 2006
 Posted March 12th, 2008 11:21 AM   IP           Reply with quote Edit Post Delete post
Jess: See my post in "detoxing and NAS"..

p.s. have you emailed with Sharon yet?
Susie.

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
Registered: Mar 2008
 Posted March 12th, 2008 11:22 AM   IP           Reply with quote Edit Post Delete post
Zenith, I posted a few things on the new members discussion pages too. Feel free to read my posts to understand me more and where I am coming from. The 1 milligrham every other day is what my DR> at the clinic said he is setting up 4 me. He said it will be fine as long as I speak up if I have any problems ar discomforts. Thanks again, Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
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 Posted March 12th, 2008 11:24 AM   IP           Reply with quote Edit Post Delete post
Yes, I e-mailed Sharon a few times... Still nothing, but I am sure she is real busy. It sounds that way to me. She doesnt know me or anything so I understand if it takes her a little bit. I did read your posts in Detoxing and NAS... I think I left a post in there as well.
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
zenith
Member

Posts: 233
Registered: May 2006
 Posted March 12th, 2008 03:46 PM   IP           Reply with quote Edit Post Delete post
Thanks, Jess. Of course I will support you and I totally understand how you feel. Maybe I should explain my own perspective--I lost my own baby at 18 weeks from a forced methadone taper in jail. I was tapered off a dose very close to yours (50mg) over 2 weeks' time. It killed my poor baby and almost killed me as well. That's when I decided to learn all I could about MMT and pregnancy. I know it must have been so hard for you to watch your sweet baby girl go through withdrawals.

The thing is, though, that if we think about it, by tapering off while pregnant, the baby IS going through the same withdrawals it would have if you tapered it off in a hospital, only unmedicated, untreated and not very well monitored. I understand that you will be seeing the doctor regularly, but that is no substitute for the constant monitoring and care of a NICU. I've not read your other posts yet, but I am wondering if she was not properly medicated by the hospital, as most severe symptoms should have been kept in check by them. But at any rate, we each have to make our own decisions and do what we feel is best--I just wanted to make sure you had all the information to do that with. Please do let your doctor know if you begin to suffer ANY withdrawals, though--that is very important. You sound like such a concerned and caring mom, Jessica, and your babies are blessed to have you.
(Edited by zenith)
   
Jessica1381
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Posts: 1215
Registered: Mar 2008
 Posted March 13th, 2008 10:14 AM   IP           Reply with quote Edit Post Delete post
Thank You Zenith for you posts and your concern. I am scared about all of this. I am so very sorry you lost your baby due to a forst detox in jail. That saddens me to hear and I think it is so good that you are using that awful experience to help other women. I am not going to be pushing my detox within two weeks like they did to you. I am going for 3 months, if I need an extra month or two then so be it. I just want to be off of it completely at leaste for the last month so it isnt in our systems at birth. I understand that my baby may go through withdrawal too as I decrease my dose, but I have to believe that any baby of mine is strong enough to make it and if I do feel even the tiniest bit of withdrawal discomfort that I will stop the taper for a little bit and then maybe try again and if doesnt work out that so be it and I will have to go through god only knows how long of hell with my baby in the NICU, as I did with my daughter for 6 LONG AGINIZING WEEKS. I cant even beging to tell you how painful those 6 weeks were for me. It was the absolute worst experience of my life and I hate to experience that all over again. The thought depresses me so badly. I cant stand to think of it. Well, in anycase, i have to go now. Thank you again for your support and help. I hope to keep in touch. I need the support through all of this. Thank you again. With Love Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
zenith
Member

Posts: 233
Registered: May 2006
 Posted March 13th, 2008 09:18 PM   IP           Reply with quote Edit Post Delete post
Well, hon, but again, I refer you to the first sentence of my second paragraph in my last post. The only real difference is that the baby is less mature and so less able to endure to taper, and we, as moms, do not have to actually watch the baby suffer--but they are still suffering. Sometimes we have to honestly ask ourselves, am I doing this to spare my baby the pain--or is it really to spare myself the pain of having to watch my baby go through NAS after birth?

Jess, please don't think that by saying that I mean to insinuate in ANY way that you are anything less than a wonderful mom who loves her baby dearly--if you were not, you would not be so troubled by the idea of watching your baby have NAS. I know that you are a great mom. However, ANYONE might have such feelings and not want to have to go through such a difficult time again, and naturally we want the first weeks with our baby to be happy ones, bonding and nursing and rocking, not hanging over an incubator in a NICU with judgmental staff members glaring at us. That is a perfectly normal and natural desire and it is normal to kind of want to avoid the idea of the baby possibly suffering in utero. So I hope you will understand that I am not intending to nag at you or drive you away or be too persistent in my posts--I just wanted to kind of maybe gently encourage you to take a close look at both sides of this issue, because the very thing you want to avoid for your baby is going to be happening anyhow, and you have less control over the outcome--i.e., treating the symptoms, monitoring vital signs, etc--than if this happened in the NICU. It is important, as Susie said, for the baby to have the time in utero devoted to growth and development and to maturation of the organs and nervous system instead of trying to fend off withdrawals and having it's sleep/wake cycle disrupted, being in pain, etc. It's much easier for the baby to deal with withdrawals with a full term nervous system than with one that is just beginning to develop.

Jess, what happened when your other baby was in the NICU? What sorts of medication did they treat her with? What happened that it was such a bad experience for you both? I mean, of course no one wants their baby in the NICU--but was she in pain? Suffering? What symptoms did she have? It just sounds like maybe she was not properly treated.
   
Jessica1381
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 Posted March 14th, 2008 10:16 AM   IP           Reply with quote Edit Post Delete post
Angelina ws treated with neo-natal morphine. I feel they kept her there way too long. I think they unfairly sared her when they did her finigan scores. It was just a very difficult experience to watch her go thru. I hated it. I hated the whole thing. I mean some of the staff was nice to me and others were not, uhm, well, I just knew they thought I was a scum bag loser of a mother. I am a good mother and I love my daughter more than I ever thought loving another human being was possible. Now I feel the same for the baby in my belly. I ust feel like I would rather do this with my baby now than later in the NICU. I dont know, I am not trying to sound selfish but I DO NOT want this baby born on methadone. I would have NEVER purposely gotten pregnant on methadone, and for those who do I think that it is okay, it isnt some thing I wanted to do again though that is all. I was on birth control and it failed. So fate had other plans for me. I just want to do this with my baby and in my heart I have to believe that my baby is going to be okay. If my daughter can make thru what she did in utero than I have to believe that this baby can make it as well and be born healthy, happy and free of methadone! That's all I want.
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
Sharon
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Posts: 1281
Registered: Mar 2006
 Posted March 16th, 2008 05:20 PM   IP           Reply with quote Edit Post Delete post
Jessica,
Sorry it has taken me so long to respond to your posts. You sound so scared and concerned about your baby! I cannot even begin to imagine how difficult it was for you after your last baby's delivery.

Can I ask you a question? How is she now? Was she born healthy and at a good weight? Is she bright and intelligent now? Normal developmentally? If you had not been in treatment with her and had been actively using what are the chances she would have been as healthy and normal as she is today? Active use hurts babies for many reasons, but the most damage or ill effects is due to the highs and lows of use of short-acting opioids like heroin and prescription opioids. As you know methadone has a long half-life and at the right dose lasts normally 24 hrs or more. And because of that fact pregnant women on methadone deliver healthier babies at term compared to women who are actively using.
Weaning your dose, especially if done to quickly can have a similar effect on your baby as actively using at least when the lows kick in and withdrawal is experienced.
One thing to keep in mind honey is that babies can be experiencing withdrawal even before you do so waiting to stop or slow your taper until you are feeling withdrawal will likely not protect him or her from withdrawal.
I truly understand that you want to taper off before you deliver and believe you think that is what is best for you and your baby, but please, please keep what I wrote above in mind and also try to imagine what it will be like for you after you deliver and try to care for a new baby and your other child as well- what will your risk for relapse be? will you be feeling well enough to care for yourself and your children? I don't know the answers to those questions- only you do.
Please be kind to yourself and take care

Hugs,
Sharon

Sharon Dembinski, RNP, CMA
Registered Nurse Practitioner
Certified Methadone Advocate
Board of Directors- Methadone Support Org
508 864-0311
   
Jessica1381
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Posts: 1215
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 Posted March 17th, 2008 08:09 AM   IP           Reply with quote Edit Post Delete post
Sharon, thank you for respondind to me. I know you are a very busy person so it's okay. It was just nice to hear back from you. If you have a chance please go back and read the things I wrote in the "welcome New Members" page... It tells a lot about me spread out through all of my posts. I have been clean and sober for 2 years now. I had one relapse during my pregnancy with Angelina. Before that I was sober for a year. I was married to a man who was using infront of me daily during my pregnancy with Ang and it was very difficult for me. I used and then got help right away. I have no fear of relapse any more. I have worked very hard for my sobriety. I have a wonderful support system and I have an amazing family and great boy friend who DOES NOT use nor has he ever. He is not an addict, but he is very understanding and supportive of me. When Angelina was born she was only 5 lbs 13 oz and 19 and a half inches long.... Now Angelina is great. She is actually a year advanced in speach. She is a very smart little girl. What I went through in the hospitol was awful. She was there for 6 weeks and I hated EVERY LAST MINUTE OF IT! They gave her neo-natal morphine. I swear that when they did her finigan scores they were not fair some of the times. I mean giving her points for being a little sloppy when she ate, come on?!?!?!?!! Or high pitch scream, well most new borns have a high pitched scream and hers, in my opinion were the same as any "normal" baby born methadone free. I dont know. I just cant handle this all over again. I cant do it. Then I have to have DSS come investigate me cuz I am on methadone when I gave birth, they will tell me that I am being accused of neglect 4 being on methadone... thats not something I care to go through again either. I want to be able to bring my new baby home right away when he or she is born in October. I dont want to wait God knows how long again and go through that hell again. I mean my OB doctor said I can come off methadone and so did my clinic doctor. They both said it has been done before succesfully. Do you know of any women who came off methadone completely during pregnancy who was on the same dose as I or even higher? I am on 40. I was in the process of coming off methadone all together when I found out I was pregnant. I was going down 5 every Friday. I was doing great. Never felt witdrawal once. I got to 7 but when I found out I was pregnant my bf didnt wanna keep the baby at first and I got real depressed so I raised my dose, which I HATE myself for doing now. I didnt reallly need to go up it was anxiety and depression that got me to do it. I didnt think he would change his mind. I couldnt be happier that he did though. I was on birth control, because personally I would have NEVER gotten pregnant on methadone purposely just because of what I went through b4 with Angelina. If you have a chance please go back to the other page that says welcome new members.... I would like it if you could read my other posts on both pages 1 and 2 in there. It explains A LOT about me. Again thank you 4 responding. I must go now. Angelina is awake. Please let me know if you know of other women who came off methadone completely while pregnant and had healthy happy babies that they were able to bring right home from the hospitol right away. I need to hear possitive feed back. I need to hear about other success stories. I know they are out there some where. Thanks Again, Jessica
(Edited by Jessica1381)

Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
Jessica1381
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Posts: 1215
Registered: Mar 2008
 Posted March 27th, 2008 10:19 AM   IP           Reply with quote Edit Post Delete post
Sharon, Have you had a chance to read my response to you??? I really need to hear positive things now. My clinic doctor now did a total 360 on me and made me sign legal papers saying if anything happens to the baby or if I lose the baby the clinic is not held responsible. He made me feel like I should stay on methadone the rest of my damn life. He made me feel like I was being selfish for choosing to come off methadone while pregnant. I start my taper next week on Friday. My doctor at the clinic didn't even know anything about split dosing while pregnant. He treated me like I was an idiot. I mean, I don't know. Before he was more positive about me coming off methadone and now he totally changed. How am I being selfish for not wanting my baby born dependant on methadone? How is that selfish? I don't understand. I really need to hear something positive. Does anyone agree with what I am doing? Has anyone else done this here and made it off methadone successfully? Sharon do you know women who have done this and their babies were born healthy with NO nas? Please respond. I know you don't agree with me either, but you must know of someone who did it and made it off methadone, right? PLEASE respond. Thanks. Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
susie3827
*MODERATOR*

Posts: 1209
Registered: Sep 2006
 Posted March 27th, 2008 11:49 AM   IP           Reply with quote Edit Post Delete post
Jess: I can't answer for Sharon but I do want to tell you that I know of women who have been on methadone while pregnant and have had babies born with NO NAS and have come home right away....
So you see, it's sort of a crap shoot...and nobody, unfortunately, can predict what is going to happen.
I have been surprised at the Number of women that I have known since being here that have given birth, on a dosage of ABOVE 60mgs. and there has been no signs of NAS at all..

And to ease your mind..the legal papers that your clinic had you sign were routine legal papers...nothing more, nothing less...so don't worry about that ok?.
Susie.

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
Jessica1381
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Posts: 1215
Registered: Mar 2008
 Posted March 27th, 2008 04:03 PM   IP           Reply with quote Edit Post Delete post
Thanks for the response. I just was hoping that maybe she knew women that come to this site that she could have talk to me that have done it, cuz I really just want the support. I want to hear a success story of one who has done what I am about to start. I would love to hear that. That's all I guess. I am just a little stressed out about it. I called a few different hospitals to do my own research and they all say the average stay for NAS babies is 4 to 6 weeks... UGH I don't wanna go through that again. I just don't see myself having the luck of my baby not showing NAS and I will be damned if I don't at least try to come off this methadone. If I cant than I cant but at least I can say I tried. If I notice even something as small as a night sweat than its over. But at least I am gonna try. That's that! As far as the papers the clinic had me sign it was just scary what they said, ya know? It sucked! Well, til next time
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
susie3827
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Posts: 1209
Registered: Sep 2006
 Posted March 27th, 2008 06:16 PM   IP           Reply with quote Edit Post Delete post
4-6 weeks is NOT the average....they are just telling you the "worst case scenario" so that if you were to have your baby there and it was to have to stay 3 weeks or so...then you can't come back at them and say "well you said it would only be a week or so"....
Therefore...they want to give the greatest possible 'average' to cover their you-know-whats

Sharon has posted that any baby that stays 6 weeks then it is usually a product of mismanagement of the NAS --ie..not educated enough to know how to wean a baby properly, and it is NOT a result of a severe case of NAS, but a result of poor management.

I think what you went thru is NOT THE NORM...really...you had a bad experience and its too bad that you had to go thru that because like I said, it is NOT the norm....I don't know if you have read the posts from the girls that have given birth throughout the past 6 or 7 months but NONE of them went thru anything like what you have.
But...I DO understand your hesitation....having "experienced" it yourself...once bitten...twice shy so to speak.

I just would beg you to stop at any minsicule thing that you feel because in reality, the baby has already been feeling the results of the withdrawl before you will feel it. I don't want to upset you but that is the reality.
By the way,.....did you read the new article that Sharon posted on the "News, Studies" section?
It is long, I would consider reading the part that applies to methadone if I were you...very informative and it give studies of women who have tapered, and who have not tapered.

Keep the faith!!!!
Susie.

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
Registered: Mar 2008
 Posted March 28th, 2008 08:56 AM   IP           Reply with quote Edit Post Delete post
I dont know what to do then. If I end up staying on methadone because I cant taper anymore, I can only go to 2 different hospitols cuz they are the only 2 in my area, and they both treat nas the same way. 4-6 wk average stay for nas babies. UGH... I am screwed I guess if I dont get off methadone. WTF! This is wonderful.... I cant win can I?!!!!!?!!! Talk to you later. -Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
susie3827
*MODERATOR*

Posts: 1209
Registered: Sep 2006
 Posted March 28th, 2008 10:47 AM   IP           Reply with quote Edit Post Delete post
Jess: they are saying 4-6 weeks AVERAGE....that is their worst case scenario...like I said before....Nobody on here who has given birth since I have been on this site has had their baby stay more than 4 weeks.

my son was in for 4 weeks but it was MY choice to have him there that long because I didn't want them tapering his morphine dose too quickly.
..I wanted to make sure that he was stable on a dose before they weaned him down to the next dose...and then I asked to stay 2 days with Nothing just to be sure he would be ok when I took him home. I didn't want to have to worry about anything...so my stay of 4 weeks was MY choice...he probably would have been home in 2 and 1/2 but I felt they were weaning him too quickly.
Susie.
PS 4 weeks in the grand scheme of things is NOT a long time...when I look back at the time stevie was in the hospital it seems like a small tiny blip in our lives...really....now I am glad I had him stay until we were sure he was fully weaned.

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
Registered: Mar 2008
 Posted March 28th, 2008 08:23 PM   IP           Reply with quote Edit Post Delete post
I know what you are saying... I do... I just dread doing it again. I want to go right home with this baby, not do the whole 4 to 6 week stay again. It seems like all the girls in this area that have babies on methadone dont get them home for about that exact time frame 4 to 6 weeks. If I am still on methadone at the time of this birth I wish I could drive the 2 hours to Kent Hospitol and have the baby there. Maybe then I would have him or her home in a week or two, ya know?! It is just stressfull and frustrating. Thats all. I want a healthy happy baby. Thats most important. I started my taper today. A week earlyer than I was suppose to... I feel good though and I went down 5. 30 in the a.m. and 10 in the p.m. Next friday I will do 5 again as long as this week goes well. I'll drop 5 in the morning every friday til I am at a total of 20 between both my night and morning doses. Wish the baby and I luck... we may need it!!! Thanks. How do I start a thread??? Love, Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
susie3827
*MODERATOR*

Posts: 1209
Registered: Sep 2006
 Posted March 28th, 2008 08:55 PM   IP           Reply with quote Edit Post Delete post
Jess: Why don't you look into having your baby at Kent Hospital...I mean...2 hours isn't ALL that far if it means that you will be treated and your baby will be treated PROPERLY.

If you are telling me that everyone in your area, on mmt and giving birth have had their babies in NICU for 4-6 weeks...then...I would question the process of weaning in those hospitals...they are not doing it properly.

If I were you???...honestly???..I would drive the 2 hours..
I had to drive 6 hours to all my prenatal tests and delivered in a hospital 6 hours away from my home....and I did it...yes..it was tricky at times...but I'm sure as (you-know-what) glad that I made the trip and had my baby at a first class, first rate Teaching Hospital in their High Risk Clinic.

If you are that afraid of the care your little one would be getting and going thru that horror again.....why would you ever even consider having your next baby in the same area??????
At least look into seeing if you can swing it to have your baby and be involved in the MOM Program at Kent.
Susie.

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
Registered: Mar 2008
 Posted March 29th, 2008 05:41 AM   IP           Reply with quote Edit Post Delete post
Well, I don't know how much I can find out on a Saturday, but I think I may try to make a few calls today... one being to Kent Hospital. It cant hurt to enquire. I am only about an hour and a half away actually. It's about a 100 mile ride, but whatever. If it means there is a chance I can have my baby in a place that may not keep her or him for 6 weeks again that so be it... I am all for it. Lets see if I make it off methadone though. I will admit, I woke up at 4:15 a.m. and have been up since. It's now 5:30... I wasn't feeling so great. I took my morning dose and now I feel better. I don't know if it was the methadone taper bothering me or just me feeling like crap for whatever other reason. I am gonna give myself a couple more mornings. It wasn't like I was feeling deathly ill. So, we will see. If it is cuz of the taper than I will have them give me back the 5 I tapered and try again another time with less than 5. Wish me luck, PLEASE! Love Jessica
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
susie3827
*MODERATOR*

Posts: 1209
Registered: Sep 2006
 Posted March 29th, 2008 09:31 AM   IP           Reply with quote Edit Post Delete post
Jess: Sharon's got 2 phone numbers under her name you can get them on any one of her posts...call them...leave her a message that you want to get on the MOM program that she runs.
YOu can get her anytime..even on a Sat. or Sun..it's worth a try.

And please..if you are feeling like you did this am one more day..please stop the taper...I'm just thinking of you and your baby.
Good luck!
Susie.
I promise if you go to Kent...you will have the BEST care you could possibly get....I wish I were in your position...I really do!!!!

______________________________________

Susanne Moore B.A., B. ScN., R.N.
Pregnancy Support Specialist
Bachelor of Biomedical Ethics
Bachelor of Nursing Science
Registered Nurse
Member of Sigma Theta Tau Honour Society of Nursing
Methadone Pregnancy Info and Support Page
Susie@MethadoneSupport.org



   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
Registered: Mar 2008
 Posted March 29th, 2008 03:32 PM   IP           Reply with quote Edit Post Delete post
Thanks Susie, I think that maybe I was just feeling like crap, but I dont think it is cuz of the taper... We will see. I will wait til 2morrow. It's 3:26 now. I still have the 10 to take for tonight and I feel fine now. So, we shall see. I have been resting all day. Just taking it easy. My mom has been playing with Angelina and had a play date with her and her friends grand kid. My bf has been working on the deck on with my dad at my house. I have been plopped on the couch watching cheezy scary movies on demand...and napped a little here and there... my kinda day! I will see what tomorrow brings. In anycase thanks for the concern. I will look for Sharon's numbers and try to reach her this week. I need to talk to my insurance company. I dont think they will cover me in a different state. Talk to you soon. Love Jessica. I will let you know how I feel 2morrow.
Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   
Sweet_Serenity
Member

Posts: 118
Registered: Oct 2007
 Posted March 29th, 2008 08:42 PM   IP           Reply with quote Edit Post Delete post
man if i lived only 1/2 hours away from Sharon, then by god i would sooo go, I even concidered moving there, and i live all the way in OHIO! so it wasn't exactly possible, but believe me when I say, if you want to ease your mind and be sure that everything will go like it should, then goooooooooo please, it may sound like a far distance but hell i guarantee it will make you fell 100% better, and your baby boy will be taken care of properly.....so do yourself and your son a favor and go the distance, you would be crazy not to. I am going through the whole hospital stay thing right now , my son is is doing well. the doc told me the whole 4-6 weeks thing too but like susie said, there just covering there A$$. its been two weeks and he is getting ready to come home, i too had my daughter on methadone and had a terrible experience, so I completely understand your fears. I would have killed to go to the MOMs program at Kent. everything did go well this time.at least so far. I would at least call and talk to her. Im sure that since since kent HOspital specializes in the area of which your son is considered high risk. that they will let you go outside your network, or maybe even find you one who does. well i have to go for now but please hunny be good to your self and your son. you both deserve it... Crystal
   
Sharon
*ADMINISTRATOR*

Posts: 1281
Registered: Mar 2006
 Posted March 29th, 2008 09:14 PM   IP           Reply with quote Edit Post Delete post
Jess.
I wish I could tell you what you want to hear, but I can't. I do not know of anyone personally or professionally who has tapered off methadone while pregnant.

I would never recommend that to anyone unless there were multiple, well done studies to support it.

I'll tell you what I tell every mom who wants to taper. Just because you cannot see your baby's withdrawal inside you does not make it ok. The baby still feels it and trying to taper now is for you and not for your baby. You are not avoiding withdrawal in your baby you are just causing it to happen earlier when your baby is smaller , less mature and more vulnerable.

Sorry to be so blunt, but I'd be doing you and your baby a diservice if I wasn't straight out truthful to you.

Of course never needing to be on methadone in the 1st place would be ideal, but now that you are on it and stable don't try to fix what isn't broken!

And remember taking care of a new baby is stressful and the added stress will be more difficult to handle when you yourself are withdrawing or not at 100%.

Please be kind to yourself, relax and rest as much as you can!

Hugs,
Sharon

Sharon Dembinski, RNP, CMA
Registered Nurse Practitioner
Certified Methadone Advocate
Board of Directors- Methadone Support Org
508 864-0311
   
Jessica1381
*SUPER MODERATOR*

Posts: 1215
Registered: Mar 2008
 Posted March 31st, 2008 10:00 AM   IP           Reply with quote Edit Post Delete post
I dont know what to say anymore... I am so depressed now. I made this choice because I felt it was the right one... now I feel like crap because of it. I feel fine physically and I went down 5 on Friday. I am going down another 5 this Friday. I dont even know how to respond to your post Sharon. Sorry. I'll have to respond later. I have to get to an appointment for a root canal. bye 4 now. -Jessica


Jessica Jensen,CSAC, CMA
Primary Pregnancy Support Specialist
Certified Substance Abuse Counselor
Certified Methadone Advocate
Certified Hepatitis C Basic Educator
Member of NAADAC, AATOD & MOAR
testing for CADAC1 in June 2010
Jessica@MethadoneSupport.org
1-860-798-5785
   



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