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Helen Smith
Posts: 988
Registered: Mar 2004 |
 Posted June 28th, 2011 09:52 PM IP   
My friend Sam is currently in ICU at a hospital in Kansas City. It has been determined that he has a bleed in his small bowel which is in a place that they cannot reach. If any of you have any experience, advice, information, hope or anything please post it because Sam is reading this message board from his hospital bed. I've encouraged him to make sure his doctors are giving him platelets, amicar and novo7. Your support and prayers are very much needed right now! Thank you!
Helen
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Gretchen
Posts: 498
Registered: Mar 2004 |
Posted June 29th, 2011 07:57 AM IP
Hang in there, Sam, Helen gave good advice, you will be in your GT families prayers, Sincerely, Gretchen and family PS enjoy that hospital food!!
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Joy
Posts: 605
Registered: Mar 2004 |
Posted June 29th, 2011 12:37 PM IP
Do they have good hospital food over in the States? Hopefully Sam with all the prayers that will said for you you will be back to home cooking in no time at all. My thoughts and prayers are certainly with you.
Joy
Scotland
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bos123
Posts: 6
Registered: Jun 2011 |
Posted June 29th, 2011 08:07 PM IP
Thoughts and prayers are with you Sam for a fast recovery. xx
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Tami
Posts: 503
Registered: Jun 2004 |
Posted June 30th, 2011 10:03 AM IP
Hi Sam,
I hope you are on mend they get this bleed under control soon. My son is 7 with GT and we have not had any experience with major GI bleeding, thank goodness. But he was also diagnosed with Celiac Disease. We keep Celiac in check by sticking to a gluten-free diet. I am not sure of your situation, but have you checked for other complicating issues not related to GT? I know that if we did not find out about Celiac and Quinn went on eating gluten, he too would have serious GI bleeding complicated by the combination of Celiac and GT. I know of one other GT patient that also has Celiac.
Sometimes when we are dealing with such a rare condition like GT we tend to attribute everything to it, maybe the bleeding is caused by something else, but complicated by GT. Just throwing out some thoughts...hope you get everything under control!
Take care,
Tami
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Kaytee
Posts: 368
Registered: Mar 2004 |
Posted June 30th, 2011 01:04 PM IP
Hi Sam,
I know what it is like to have a major GI bleed. Luckly have not had one in 30 years. They never did find where my bleed was coming from. If you need to talk, give me a call. I believe we have talked before. You are in my prayers and will be thinking of you.
Be safe and take care,
Kaytee
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sherry
Posts: 69
Registered: Aug 2009 |
Posted June 30th, 2011 11:52 PM IP
I have had numerous GI bleeds, but they have never found where mine came from! Hang in there! Praying you have a speedy recovery!
My husband wonders why I have so many shoes!
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gwhitih
Posts: 6
Registered: Feb 2011 |
Posted July 8th, 2011 12:28 AM IP
Praying for Sam...and a speedy recovery.
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crisrc
Posts: 174
Registered: Jun 2007 |
Posted July 9th, 2011 08:04 AM IP
Praying for you Sam. I hope you can get better soon.
Cristiane & Luisa
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Gretchen
Posts: 498
Registered: Mar 2004 |
Posted July 17th, 2011 11:07 AM IP
Hi Sam, how are you doing? Hope recovery is going smoothly, all the best.
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Steve
Posts: 22
Registered: Feb 2006 |
Posted July 17th, 2011 04:43 PM IP
Hi Helen,
Sorry to hear about your friend. How is he ?? Most time in recent years I have spent in the hospitol have been for GI bleeds. They could not locate the exact location but thru many blood transfusions and time it stopped,,,once I blead for six days. You have my number Helen anytime youneed anything.....Steve
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Helen Smith
Posts: 988
Registered: Mar 2004 |
Posted July 26th, 2011 01:45 PM IP
Sam is still bleeding! He asked me to post his current status a couple of days ago but my internet has been down! Sam has been bleeding for almost 80 days and has received almost 100 platelet transfusions. He's been scoped, has swallowed the camera, and has been receiving Amicar and Novo7 without any relief. He is considering undergoing a procedure in Texas that involves a new technology that involves both the large intestine and small intestine. Any support, prayers, advice, referrals, etc are more than needed at this point. Please give Sam a call to let him know he is your thoughts and prayers! 816-803-5701.
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rema karam
Posts: 48
Registered: Sep 2009 |
Posted August 11th, 2011 01:42 AM IP
wow 80 days my son had a gi bleed for 1 week and it stopped with novo seven the first time my prayers are realy goingout for you sam i live in dallas texas if you can tell me where the procedure is at in texas please.
rema haifs
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Glanzmanns GT :: :: General Discussion :: GI Bleed...PRAYERS NEEDED |
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